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Archive for the ‘Faith’ Category

Miss Ashley Kate is in need of more prayers. She is in need of HOPE for her family. They need to see some positive improvements. They need us to lift them up to God and pray for them when they have no more energy to do it themselves. I am so sad for this family. I can’t tell you how many times a day I check their blog to see what, if any changes there are. Unfortunately there are few. Although yesterday Miss Ashley signed two words to her grateful Mommy… music and drink. It is a big deal as she hasn’t had the energy to ask for anything. She only has energy to moan, cry and wince in pain. They are trying to find a level of comfort for her that seems to always be out of reach. When they do find the right combination they will try to go home and wait for her to heal at home. Their main goal is to get her home, to me surrounded by her familys’ love. There is nothing further to do but wait and as the treatment will not show any signs of healing for 6-8weeks.

Miss Ashley Kates’ 5th birthday is coming up and many friends and family are going to Omaha to celebrate with them at the hospital. Please pray that their hope will be restored. Here is an excerpt from the blog.

“Then only hope we have is that God reach down into our family, into our hearts, into the broken body of our almost 5 year old and give us that miracle. When all hope fails, the hope we seek in in Christ and His healing power for each of us. We still need a miracle. The biggest we have ever seen.

Your prayers for my son as he learns the gravity of what his baby sister faces are more than appreciated. Your prayers for my husband as he seeks the strength to actually say the words that have to be said would be appreciated. Your prayers for my Allison as she prepares to leave her mom and her baby sister without a trace of guilt for she has nothing to feel guilt over would be appreciated. Your prayers for our baby, the heart of our family, for her life, her health, her survival would be greatly appreciated.

Thank you for praying. Thank you for sticking it out with us. Its rough, it may get rougher still, if you can fathom that. You will never know how your simple words “I’m praying for you” shared with me in brief message have become so much more than just simple words and phrases. It is the very breath that I am breathing through this time. When I am out of prayers, the words fail to come, the exhaustion takes over, I know that she is being lifted to our Father in Heaven and that He won’t forget how desperately we all seek His presence, His miracles, and His love.”

Thank you for your prayers.

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Please be in prayer for a Brave little Miss. Her name is Ashley Adams and she is fighting for her life. She is in rejection of her bowel and needs any and all prayers she can get. She had a three organ transplant in 2006 and… well go to her blog  read her amazing journey and let the family know you too are praying.  They have asked for prayer from whomever is willing to pray on their little ones behalf.  You can also go to her Facebook page.

Hugs and Blessings… Kim

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Please pray for Lukas. He is 3 1/2.

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He was just diagnosed with Stage 4 Neuroblastoma. He will start treatment in the morning. The tests are showing signs in his bones and all over his body. His Mom Emily has given me permission to put his picture up in hopes for as much prayer as possible. This is all of the info I have right now and she has said she will keep everyone updated as she can. Please also be praying for Emily for strength, guidance, courage and protection for her heart.

Thank You in advance.

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I told you about my sister coming from California to take me to my surgery, remember?  We she oh about 40 or less miles away and she hit a deer. She is fine and wasn’t hurt and her dogs are fine too. Her car……..not so much. She won’t know officially until Monday because of the holiday weekend, but it seems like the car will be totalled. 

I put an emergency call to BFF C and asked if she could take me to my surgery and stay till Friday when I am to be released.  She has 4 kiddos so I didn’t know if it was going to be possible.  She made some phone calls got everything worked out and we were on our way. .

I was so nervous this time and it was nice to go away and spend time with her. We ate a Jack in the Box and went to Michaels Craft store and also to Ben Franklins Craft store. We touched all of the scrapbook stuff and all of the yarns and accessories…we don’t have these stores here at home so we had to make sure we saw everything.

The surgery went well and I haven’t had too much pain/discomfort. The  doctor said that when he cut the lower leg tendon then my toes on that foot sort of crunched up so he decided to cut those tendons as well.  When I started to come out of anesthesia my toes were bothering me the most. They felt like they were being squished by the bandages. I woke up to a walking boot instead of a cast and didn’t understand what the dr. was thinking. When I finally got to my room BFF C told me that dr. had clipped me toes too. After the bandages were adjusted my piggy toes were much better : )

I hope to get some pics up of sisters’ car and will keep you posted on everything.

Thanks all

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So to begin where I left off… I had a complete 3 year old fit and though I didn’t feel totally better, I felt justified of sorts.

My fit was due to two contractors/landscapers that did NOT turn in their estimates as agreed. They had been asked to give estimates regarding having our backyard leveled out to accommodate Miss T and her love of climbing and being free to run of sorts. Miss T was given a opportunity to apply to a grant to have this done. Well they assured me that all would be well with the timing and they could/would have all info faxed to our case manager….. WELL that didn’t happen on the morning of expected turning in of said application!!! One of them finally did and so at least we had one for the committee to look at. We are still waiting for news…

Miss T’s sedated ear cleaning and possible tubes went well 🙂 She started with a cold and slight fever the night before, but she didn’t have a fever the morning of and her lungs were clear so we continued as planned. She did very well with the anesthesia and coming out of it. She actually did the best she had before. The dr. ended up placing one tube in her left ear and preforming a myringotomy on the right. All was well and her cold cleared after a week or so.

My AFO– I finally got my Ankle Foot Orthotic. I had totally pictured a scenario like Cinderella and the glass slipper 😉 Well that so DID NOT happen. It was uncomfortable and hot and made my toes crunch up more(if that was even possible). So about three weeks out now and I am getting used to it and actually don’t mind it as much 😉 I do have a couple spots that I need to address which I think is expected. All is well there 🙂

Miss T’s Sedated ABR–(hearing test) We had to go to Portland to Dornbecher Children’s Hospital. I know I have mentioned that I sssooooo don’t like going there 😦 I just don’t have good memories… anyway we got there early :} I was trying to plan for traffic and weather but I didn’t plan for No traffic and Good weather…. So we ( me, Nana, and Miss T) the “husband” had to work… Miss T so did not like being there. She wouldn’t get down on the floor and play with all or any of the fun things they had around. She only stayed in one of our laps. She ended up have the Versed nose spray to get her calm enough so they could start her IV. It was SO much better then last time when the had us help hold her down with the “mask” on for her to go out… I made sure I let them know I did NOT want to be a part of that again! She did well and her test came back “NORMAL HEARING”!!!!! Hopefully this will now get everyone on the same page and they will quit bugging me about this. As I have said before “I do think she hears, I don’t think she is a good listener” Hello she is a toddler and she has a teenage sister so she has been learning from the best on NOT listening or at least “Selective Listening”.
I know you know what I’m talking about 😉  ((EDIT: I just found out yesterday that this test is available in Eugene which is 3hours closer then Portland |:{   can you say annoyed! ugh!

My next surgery date– Finally!!! I have scheduled for July 2… happy 4th :}. Thats ok I’m not really a firework kind of girl… Ihave never really liked them. Too Scary for me.

Oh I almost forgot. We are going to the Down Syndrome Convention in Sacramento, Ca. I am very excited!!! I was able to get a grant from our Early Intervention Program to pay for registration and also a gas allowance.  We hope to meet up with other family’s we have met online and have lots of  fun!!

You know with all of these grants I/We have been given lately maybe I should think about going into Grant Writing???  Who knows maybe that is my thing. Oh but wait I am good at the filling in the blanks part not the creating of the grant…LOL It was a thought. 😉

So I think I have touched on almost everything. My camera has been acting up so I don’t keep it as handy, but I do have some pics to share soon.

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Is it wrong that I am actually enjoying myself. I really feel quite GOOD! I had a tiny bit of a hard time staying awake when I first got to recovery. I am a serious light weight when it comes to heavy meds. You know like Morphine…. OH YEAH! I also had the “itchiness”, got some benedryl and went back to sleep of course 😉

There was a elderly lady in the bed next to me and she was soooo sad. She kept asking for help for her pain and there were a lot of nurses around her trying to help and get her calm. She was just so confused, hurting and sad. She also kept asking for “Roger”….Roger are you here? Are you still here Roger? Come to find out Roger is her doctor. I just wanted to HUG her 😦 Instead I kept praying for her 🙂

I have more to share but I’m gonna lay down… Thanks for all the good thoughts 🙂

Oh ~~~~ This is for Miss G ~~ I LOVE YOU TO THE MOON AND BACK!!! Thank you for all of your help with MiMi and your prayers. MMMWWWAAAAHHHH!!! OOOOOOOO BIG HUGS!!!

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So I am getting ready for the big surgery. I leave in the morning to go to Eugene/Springfield area to go for my pre-op stuff. I don’t know what time surgery starts on Thursday so will have to update when I get home on Friday. I want to do a before, during and after type photos so those will coming up.

As excited as I am to get this going forward, I must admit I am a wee bit nervous. I have NEVER had a surgery before! I don’t count Miss Ts’                C-section 😉  I got something out of that besides I was in labor for days ( well it seemed that way)before they took her.

I think I am more nervous of the 6 weeks of “recovery” afterwards. I didn’t have any issues or problems with my incision. Granted I was just bit preoccupied with all of Miss Ts’ exciting adventure of her first weeks.

Plus I am going to be gone from my girlie’s 😦  I haven’t been away from them both at the same time. I know that seems whiner baby, but it is the truth.  I will miss them lots and lots.  I am very comforted in knowing that they will be cozy at home with Nana(my mom) and really will only miss me at meal time and bed time. I  do have my specialties I guess 😉 

Hey if you think about it would you keep us in your prayers thanks bunches. Anyway update in a few days 🙂

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